Co-production workshops underway
The first round of workshops with patients and carers has started. Themes so far: communication, clarity, and feeling listened to.
Read more →Research project · 2026 – 2029
Care and support for people approaching the end of life — and the people who care for them.
CARE-PAC is a three-year research project, funded by the NIHR, developing a digital remote monitoring and support system that helps patients, families, and clinicians work together more closely. Co-produced with the people who will use it. Tested in a randomised controlled trial.
Find your way in
Who are you here as today?
CARE-PAC has different things to say to different people. Pick the route that fits.
Patients & carers
I am living with a serious illness, or caring for someone who is
What the project is, what taking part might involve, and where to find support.
Read in plain English → Healthcare professionalsI work in palliative care, oncology, primary care, or hospice services
How CARE-PAC fits into existing pathways, what we are evaluating, and how to refer or get involved.
Clinical overview → ResearchersI am working in digital health, palliative care, or health-services research
Study design, methods, outputs, and opportunities to collaborate.
Study at a glance →Where we are
The project in three phases
CARE-PAC runs from February 2026 to January 2029. We are currently in the co-production phase, working with patients, carers, and clinicians to shape what we build.
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2026 — Year 1
Co-production with patients, carers, and clinicians
Workshops and iterative design activities to make sure the system reflects real-world needs and fits inside existing care pathways.
In progress
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2027 — Year 2
Refinement & trial set-up
The system is refined and prepared for evaluation. Trial sites onboard and the protocol is finalised.
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2027 – 2029
Randomised controlled trial
Around 200 patients across multiple UK sites take part. We measure symptom burden, quality of life, healthcare use, and carers’ experiences.
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2029 onwards
Real-world adoption
If effective, CARE-PAC moves from research into routine practice — alongside a clear route to scale and sustainability.
Latest
News & updates
Project officially launched
Kick-off meeting at the University of Strathclyde brought together the multidisciplinary CARE-PAC team for the first time.
Read more →PPI panel applications open
We are putting together a Patient and Public Involvement panel. Expressions of interest will open shortly.
Get notified →Want to be involved?
Whether you are a clinician interested in trial sites, a researcher exploring collaboration, or a patient or carer who would like a voice in shaping the system — we would love to hear from you.
Contact the team