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About
CARE-PAC stands for the Care and Support System for Patients and Carers receiving palliative and end-of-life care: a digital remote monitoring and support system. This tool will be developed through a three-year, National Institute for Health and Care Research-funded research project partnered with NHS trusts, hospice services and research professionals, led by the University of Strathclyde.
Better days at home, and fewer surprises for everyone.
CARE-PAC helps people with a life-limiting illness stay in touch with their care team from home, so problems are spotted sooner, families feel less alone, and care fits around the person, not the other way round.
Care that reaches people where they are
Living with a life-limiting illness is hard: for the person who is unwell, for informal carers, and for the clinicians trying to help. Symptoms shift quickly, communication is often delayed, and important needs can be missed because no-one is in the room at the right moment.
CARE-PAC is a digital remote monitoring and support system designed to spot problems early, improve communication, and enable timely, personalised care, built with the people who will use it, and tested in a randomised controlled trial across multiple UK sites.
Shaped by patients, carers, and clinicians
The project begins with a strong co-production phase. Through workshops and iterative design activities, patients, carers, and professionals shape the content, functionality, and integration of the system within existing care pathways, so it is usable, acceptable, and relevant across diverse care settings.
Following co-production, the system is refined and prepared for a trial that examines its impact on:
- patient symptom burden and quality of life
- carers’ and patients’ experiences and support needs
- patient and carer distress
- patterns of healthcare use
From research into everyday care
A key strand of the project is its focus on real-world adoption. Alongside the trial, the project actively explores pathways to scale and sustainability, including integration within health and care systems, and alignment with regulatory and market requirements.
The goal is a clear route from research into routine practice if the intervention proves effective, so what we learn reaches the people who need it.
Looking for the technical detail?
Our research-facing page covers the study protocol, work packages, and methodology in depth.
Want to be involved?
Whether you are a clinician interested in trial sites, a researcher exploring collaboration, or a patient or carer who would like a voice in shaping the system, we would love to hear from you.
Contact the team